Yesterday was the last day of the week-long March school holidays, so we figured let's take C for a bus ride. Other than a forgettable morning hike up north three days ago, mired by sweltering heat and a less-than-scenic route, we had spent most of the week at home as the boys completed holiday homework … Continue reading Daily living with autism #4 — A bus ride to Neverland
Should a person with an invisible disability (PWID) like autism wear a visible identity label in public? So asked a forum contributor in the local dailies. In her letter that was published yesterday, Ms Amy LOH Chee Seen wondered if it would help to stick a label or some sign on a PWID. That way, … Continue reading Autism advocacy #2 — To label or not to label?
When it comes to helping those in need, I believe it boils down to these four words: Enabling. Empowering. Empathising. Embracing. How did I come to this conclusion? Well, two days ago I joined a nationwide focus group forum to contribute ideas for the new Enabling Master Plan (EMP) 2030. It was the last in … Continue reading Autism advocacy #1 — It starts with enabling
"Daddy, I don't want to go to school!" Words I haven't heard in a long while suddenly rang in my ears. Like some Back to the Future deja vu time loop! What's going on?! I turned around to see my youngest with a face already turning a steady red to match his tear-stained eyes. "Oh … Continue reading Daily living with autism #3 — School just got harder!
When parenting a boy with disability, one constant concern is this: will he clear age-appropriate milestones in time? I'm no different. With my autistic son, it's always at the back of my mind, this fear he won't mature in time to enjoy what his neuro-typical peers take for granted. These could be things like confidently … Continue reading Daily living with autism #2: Surmounting milestones
On World Children's Day, let me share about a recent poolside encounter. A couple of weeks ago, I overheard an interesting conversation between a male who looked to be in his late 50's and a young boy about my son's age of 12. The exchange took place at a neighbourhood pool where I go for … Continue reading On World Children’s Day – How a poolside encounter reminded me what truly counts
"Daddy, look!" It was a typical weekday evening, an hour before dinner time. That's when I usually take C for some outdoor play. What we in my family sometimes refer to as his "eye-care" time, away from home screens and out where nature and distant sights of the world await. The ground outside was fairly … Continue reading Daily living with autism #1: It’s about small wins!
Source: Writer's Photo Album (August 2021) One thing that warms the heart of any parent is the opportunity to watch their children happily playing with each other. For me, it's a combination of joy as well as relief. Of late, the latter mostly, because that means I can finally take a break! Sigh...caring for C … Continue reading Parenting Motivations #4 – Sibling Solidarity
When I first started on today's post, my intent was to talk about the progress C's made in the last two years. And yes, there have been quite a few. At some point in the near future, I hope to do him justice with that post. But not today. Today, I want instead to talk … Continue reading Losing It! #2 — Of frogs, bullets and silver linings
As a parent and caregiver, I don't always realise it until my sons are fast asleep at night, so busy am I throughout the day fleeting to meet first one child's needs, then the other's (and back again!). But when the lights are out and my boys are finally in bed, I start to feel … Continue reading To be a better caregiver, I must flip my day for night!