The great Mark Twain once said: "Age is a case of mind over matter. If you don't mind, it doesn't matter.". Well, the truth is when it comes to my son, I do mind. And it does matter. Or rather I did mind, and I thought it mattered. Today I'm trying to remind myself of this … Continue reading My autistic son turned 12 today. I need to catch up.
Dear Patience I need a healthy dose of you this season. Because I'm not a good parent when it comes to coaching my autistic son during this exam season. Let me explain using just one of his school subjects by way of illustration. Weird Science! Photo by Wilawan Pantukang on Pexels.com The topic we revised … Continue reading Daily living with autism #10: Science is hard!
I know this is going to sound like a broken record because I've talked about math worksheets in past blog posts. But because it just happened two days ago on a hot and humid "homework afternoon", and I ended up all hot and bothered, with my son C all scared and flustered, the memory is … Continue reading Daily Living with Autism #8 — Fractions that fracture
Last week, the topic of love languages arose at a kid's day camp my autistic son C attended. Spanning three days, it was part of our church's holiday programme for those aged 7 to 12. It's been two years since such camps were held (thanks to you-know-what), so my wife and I were definitely glad … Continue reading Daily living with autism #7– the 5 love languages
Let me start by saying I want to put the blame squarely on Covid, and the two years of possible intervention that it has robbed us of. But can I? Honestly? I'm afraid the answer isn't all that clear. What was clear though, after a recent annual follow-up with my son's assigned senior consultant at … Continue reading Daily living with autism #6 — Beginning again. Again!
Yesterday was the last day of the week-long March school holidays, so we figured let's take C for a bus ride. Other than a forgettable morning hike up north three days ago, mired by sweltering heat and a less-than-scenic route, we had spent most of the week at home as the boys completed holiday homework … Continue reading Daily living with autism #4 — A bus ride to Neverland
Should a person with an invisible disability (PWID) like autism wear a visible identity label in public? So asked a forum contributor in the local dailies. In her letter that was published yesterday, Ms Amy LOH Chee Seen wondered if it would help to stick a label or some sign on a PWID. That way, … Continue reading Autism advocacy #2 — To label or not to label?
"Daddy, I don't want to go to school!" Words I haven't heard in a long while suddenly rang in my ears. Like some Back to the Future deja vu time loop! What's going on?! I turned around to see my youngest with a face already turning a steady red to match his tear-stained eyes. "Oh … Continue reading Daily living with autism #3 — School just got harder!
[An edited version of this post first appeared here] "No Lord! Not again! This can't be happening..." These words blazed across my brain like a lightning bolt out of the blue. Last Friday, the bodies of twin boys were recovered in a canal not far from a park and playground. (At the time of this … Continue reading A plea for caregiving fathers of special needs kids
When parenting a boy with disability, one constant concern is this: will he clear age-appropriate milestones in time? I'm no different. With my autistic son, it's always at the back of my mind, this fear he won't mature in time to enjoy what his neuro-typical peers take for granted. These could be things like confidently … Continue reading Daily living with autism #2: Surmounting milestones