[An edited version of this post first appeared here] "No Lord! Not again! This can't be happening..." These words blazed across my brain like a lightning bolt out of the blue. Last Friday, the bodies of twin boys were recovered in a canal not far from a park and playground. (At the time of this … Continue reading A plea for caregiving fathers of special needs kids
When parenting a boy with disability, one constant concern is this: will he clear age-appropriate milestones in time? I'm no different. With my autistic son, it's always at the back of my mind, this fear he won't mature in time to enjoy what his neuro-typical peers take for granted. These could be things like confidently … Continue reading Daily living with autism #2: Surmounting milestones
Last week, I embarked on a two-month long training programme. The programme's meant to equip me as a 'befriender' or care buddy to other caregivers of children with special needs. Those who need not just the usual professionals like counsellors, therapists, doctors, special needs teachers, or social workers for their children; but also someone who … Continue reading Telling My Story of C’s Diagnosis
"Daddy, look!" It was a typical weekday evening, an hour before dinner time. That's when I usually take C for some outdoor play. What we in my family sometimes refer to as his "eye-care" time, away from home screens and out where nature and distant sights of the world await. The ground outside was fairly … Continue reading Daily living with autism #1: It’s about small wins!
Former US President Theodore Roosevelt said the best foreign policy was "speak softly and carry a big stick." Talk about a succinct way to define realpolitik and gunboat diplomacy! I often find that to be true too when it comes to home based learning (HBL) with my son C; at least when it comes to … Continue reading How home-based learning is like “realpolitik”!
Source: Writer's Photo Album (August 2021) One thing that warms the heart of any parent is the opportunity to watch their children happily playing with each other. For me, it's a combination of joy as well as relief. Of late, the latter mostly, because that means I can finally take a break! Sigh...caring for C … Continue reading Parenting Motivations #4 – Sibling Solidarity
When I first started on today's post, my intent was to talk about the progress C's made in the last two years. And yes, there have been quite a few. At some point in the near future, I hope to do him justice with that post. But not today. Today, I want instead to talk … Continue reading Losing It! #2 — Of frogs, bullets and silver linings
When my wife and I first made C's glasses 26 months ago, the lenses were at 200 degrees (each!). No doubt high for an eight-year-old. But since we ourselves were bespectacled (his brother too), it wasn't surprising. Disappointing yes, but not surprising. Sadly, four days ago, we were dealt another blow when we visited the … Continue reading Parenting Motivations #2 – Never “take your eyes off the prize”
As a parent and caregiver, I don't always realise it until my sons are fast asleep at night, so busy am I throughout the day fleeting to meet first one child's needs, then the other's (and back again!). But when the lights are out and my boys are finally in bed, I start to feel … Continue reading To be a better caregiver, I must flip my day for night!
It's tempting to say that this is a coincidence. After all, it was just two weeks ago that I wrapped up my series reflecting on our nation's inaugural Autism Enabling Masterplan. That's a plan to muster all aspects of help and support for the autism community in my country. As I ponder this matter, I … Continue reading Finally, an action map to support caregivers!